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Nightmarish new disease - VoxClamantis - 05-12-2006

Well, if this doesn't give you nightmares, nothing will. From My San
<FONT size=4>Doctors puzzled over bizarre infection surfacing in South Texas</FONT> <FONT size=-1><B> Web Posted: 05/12/2006 10:51 AM CDT</B></FONT> <FONT size=-1><B>Deborah Knapp
KENS 5 Eyewitness News </B></FONT>
If diseases like AIDS and bird flu scare you, wait until you hear what's next. Doctors are trying to find out what is causing a bizarre and mysterious infection that's surfaced in South Texas.
Morgellons disease is not yet known to kill, but if you were to get it, you might wish you were dead, as the symptoms are horrible.
"These people will have like beads of sweat but it's black, black and tarry," said Ginger Savely, a nurse practioner in Austin who treats a majority of these patients.
Patients get lesions that never heal.
"Sometimes little black specks that come out of the lesions and sometimes little fibers," said Stephanie Bailey, Morgellons patient.
Patients say that's the worst symptom — strange fibers that pop out of your skin in different colors.
"He'd have attacks and fibers would come out of his hands and fingers, white, black and sometimes red. Very, very painful," said Lisa Wilson, whose son Travis had Morgellon's disease.
While all of this is going on, it feels like bugs are crawling under your skin. So far more than 100 cases of Morgellons disease have been reported in South Texas.
"It really has the makings of a horror movie in every way," Savely said.
While Savely sees this as a legitimate disease, there are many doctors who simply refuse to acknowledge it exists, because of the bizarre symptoms patients are diagnosed as delusional.
"Believe me, if I just randomly saw one of these patients in my office, I would think they were crazy too," Savely said. "But after you've heard the story of over 100 (patients) and they're all — down to the most minute detail — saying the exact same thing, that becomes quite impressive."
Travis Wilson developed Morgellons just over a year ago. He called his mother in to see a fiber coming out of a lesion.
"It looked like a piece of spaghetti was sticking out about a quarter to an eighth of an inch long and it was sticking out of his chest," Lisa Wilson said. "I tried to pull it as hard as I could out and I could not pull it out."
The Wilson's spent $14,000 after insurance last year on doctors and medicine.
"Most of them are antibiotics. He was on Tamadone for pain. Viltricide, this was an anti-parasitic. This was to try and protect his skin because of all the lesions and stuff," Lisa said.
However, nothing worked, and 23-year-old Travis could no longer take it.
"I knew he was going to kill himself, and there was nothing I could do to stop him," Lisa Wilson said.
Just two weeks ago, Travis took his life.
Stephanie Bailey developed the lesions four-and-a-half years ago.
"The lesions come up, and then these fuzzy things like spores come out," she said.
She also has the crawling sensation.
"You just want to get it out of you," Bailey said.
She has no idea what caused the disease, and nothing has worked to clear it up.
"They (doctors) told me I was just doing this to myself, that I was nuts. So basically I stopped going to doctors because I was afraid they were going to lock me up," Bailey said.
Harriett Bishop has battled Morgellons for 12 years. After a year on antibiotics, her hands have nearly cleared up. On the day, we visited her she only had one lesion and she extracted this fiber from it.
"You want to get these things out to relieve the pain, and that's why you pull and then you can see the fibers there, and the tentacles are there, and there are millions of them," Bishop said.
So far, pathologists have failed to find any infection in the fibers pulled from lesions.
"Clearly something is physically happening here," said Dr. Randy Wymore, a researcher at the Morgellons Research Foundation at Oklahoma State University's Center for Health Sciences.
Wymore examines the fibers, scabs and other samples from Morgellon's patients to try and find the disease's cause.
"These fibers don't look like common environmental fibers," he said.
The goal at OSU is to scientifically find out what is going on. Until then, patients and doctors struggle with this mysterious and bizarre infection. Thus far, the only treatment that has showed some success is an antibiotic.
"It sounds a little like a parasite, like a fungal infection, like a bacterial infection, but it never quite fits all the criteria of any known pathogen," Savely said
No one knows how Morgellans is contracted, but it does not appear to be contagious. The states with the highest number of cases are Texas, California and Florida.
The only connection found so far is that more than half of the Morgellons patients are also diagnosed with Lyme disease.
For more information on Morgellons, visit the research foundation's Web site at
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Nightmarish new disease - Historian - 05-12-2006

[Image: sick.gif] Oh God, that's sound horrible! Can you imagine those fibers coming out of your skin? [Image: puke.gif]

Nightmarish new disease - sean - 05-12-2006

Quote: The apparent success of antibiotic treatment for Morgellons hasn't swayed doctors like Lynch--mainly because pathologists have failed to find an infectious agent. "These scientists can recognize things down to the prion level, and viruses that do everything to evade detection," he says. Lynch's preferred treatment: the antipsychotic drug risperidone--which works, he says, in as little as two weeks. Another prominent dermatologist, who insisted on anonymity out of concern for his safety, says he has diagnosed 50 or so Morgellons patients with cutaneous dysaesthesia--a neurological disorder that can result in the sensation of scuttling insects. And the spiny things? "In every case I've seen it's a textile fiber, and it's on the surface of the skin," he says. He typically puts a cast over the lesions to prevent further irritation and after four weeks removes it. "Guess what?" he says. "The lesions are healed."
Leitao and other Morgellons activists say that, with the Web as a primary tool, they'll continue working to have the illness investigated as an infectious disease. Doctors interviewed by PM say this unilateral approach hinders objective analysis of symptoms they've seen for decades. Well, all symptoms except for one: Widespread reports of the strange fibers date back only three years, to the time they were first described online, at

Nightmarish new disease - miss_fluffy - 05-12-2006

I looked at this website and to me it appears to be a kind of neurological autoimmune disease.  Autoimmune diseases are becoming more and more prevalent, having a lot to do with toxic environments.  Autoimmune diseases are also often trigerred by viruses or infections that clear up, but then leave the patient with a lifelong disease (psoriasis is a good example of this).  It's possible that the Lyme disease that many sufferers have may trigger an autoimmune response. 

There has also been alot of evidence that things like mental disease, and stress exacerbate autoimmune disorders, so the fact that alot of the people have mental problems, chronic fatigue and the like, isn't necessarily a part of the disease itself, only that it is more likely to manifest in this population.

Collagen fibers are found in the thick, strong underlying dermis layer of the skin.  Perhaps as some kind of crazy immune response the skin is over-generating collagen fibers and causing lesions?

So anyways, that's my rambling guess/analysis of this strange new disease.  I hope it's not contagious... looks like alot of people have it where I live.  EEK!

Nightmarish new disease - Historian - 05-13-2006

How gruesome. For once I am speechless. Never heard a news report on this.

Nightmarish new disease - kjvail - 05-13-2006

Take a look at the world map on the morgollon's foundation page, linked by the original story.

It is so odd, it is ONLY affecting Western or Westernized nationa (like Japan, Indonesia, Phillipines, South Africa, Europe and the US)
In Europe, with the exception of Portugal, it is effecting every former "Western" european coutnry and is completely absent in all the "Eastern" European countries (Poland, Czech, Slovakia, etc)

Nightmarish new disease - VoxClamantis - 07-26-2006

<P style="MARGIN: 0px" align=center><FONT size=4>Update</FONT>
<FONT size=4>CDC considers Texas for Morgellons study</FONT>
Web Posted: 07/25/2006 12:50 AM CDT
Deborah Knapp
KENS 5 Eyewitness News

The Centers for Disease Control and Prevention is launching a study of Morgellons disease that may target South Texas where more than 100 people are suffering from the illness.
Cindy Casey suffers from Morgellons. Symptoms of the disease include lesions that leave scars, the sensation of bugs crawling under the skin, and fibers that pop out of the skin.
"Mostly black and white. Some of them were blue, and some of them were red. The whole area gets really sore and you feel some sort of crawling sensation around the lesion," Casey said.
Like others, Casey was diagnosed with delusional parasitosis — delusions of parasites. Most doctors do not recognize Morgellons as a disease.
However, one medical school is taking Morgellons very seriously. Most of the research on Morgellons is being done at Oklahoma State University in Tulsa. Doctors and scientists at OSU said this disease is real, and it's frightening.
"I am 100 percent convinced that Morgellons is a real disease pathology," said Dr. Randy Wymore, an assistant professor of pharmacology and physiology at OSU.
Wymore has spent the past year studying hundreds of fibers from Morgellons patients.
"The samples do look very similar to one another," he said.
Wymore added that the fibers don't look like anything found in textiles. He has also determined that the fibers are not rubbing off from clothing, because doctors at OSU have found the fibers inside the body.
"We were able to observe fibers under completely unbroken skin," he said.
Dr. Rhonda Casey has examined more than 30 Morgellons patients.
"There's no question in my mind that it's a real disease," she said.
Dr. Casey has extracted fibers from under the skin, and examined them under a microscope.
"If it were not for the fibers, the patients would all be taken seriously. So I think even though the fibers may be a key to helping us diagnose this disease, they have also been a hinderance to it even being accepted as a real disease in the past," she said.
Even thought the lesions and fibers are the most visible symptoms, doctors said the more damaging effects of this disease are the nerve and neurological damage, which affects the ability to think and move.
"Trouble concentrating, trouble communicating, and problems thinking of the words you want to say, and how you want to express yourself," patient Cindy Casey said.
However, it is the symptoms that sound like science fiction that make this disease like no other.
"I pulled some fibers out, and I was just taking a look at it, and the fibers just started to move around, kind of around each other," Cindy Casey said. "And I screamed to Charles (my husband), 'Charles, come here and look, because everyone's been telling me I'm crazy. Charles, look at this,' and he looked at it, and yeah, he saw it too."
"This one I didn't want to believe," Charles Casey said.
Incidents like that are just one more bizarre part to this puzzling disease that seems to be spreading.
"There is the slightly frightening component to it that we don't know what causes this. If more and more people are coming down with Morgellons, we need to get a handle on this," Wymore said. "Is there an environmental component that needs to be addressed? Is it contagious? These are all things that we don't know the answer to at this point."
The CDC has formed a task force to investigate Morgellons, and they are launching a study to find out where this condition is most common and who it affects. Texas is one of the states with the most cases per capita, and the epidemiology study may be conducted here.
The CDC has setup an e-mail address for people to ask questions, because of the volume of calls following the reports that aired on KENS 5 in May. That e-mail address is

Nightmarish new disease - AdoramusTeChriste - 07-26-2006

<P style="MARGIN: 0px" align=left>
Quote: "<FONT style="BACKGROUND-COLOR: #99ffff">I pulled some fibers out, and I was just taking a look at it, and the fibers just started to move around, kind of around each other</FONT>," Cindy Casey said. "And I screamed to Charles (my husband), 'Charles, come here and look, because everyone's been telling me I'm crazy. Charles, look at this,' and he looked at it, and yeah, he saw it too."
<P style="MARGIN: 0px" align=left> 
<P style="MARGIN: 0px" align=left>[img]/images/boards/smilies/eek.gif[/img] [img]/images/boards/smilies/eek.gif[/img] [img]/images/boards/smilies/eek.gif[/img]  How horrible!
<P style="MARGIN: 0px" align=left> 
<P style="MARGIN: 0px" align=left> 

Nightmarish new disease - Historian - 07-26-2006

That's freakin scary. I'm going to be scarred for life now.

It's probably some government created disease, funded by freemasons and let loose on the population. I bet all those people in Texas are Catholics. [Image: wink.gif]

Nightmarish new disease - Historian - 07-26-2006

<FONT face="Georgia, Times New Roman, Times, Serif">That is a rather disturbing article/disease.</FONT>
<FONT face="Georgia, Times New Roman, Times, Serif"></FONT> 
<FONT face="Georgia, Times New Roman, Times, Serif">May God soon heal our many wounds, spiritual and corporal.</FONT>