Update on "several things"
#1
They came and did a developmental evaluation w/ my DD today.  She is 26 months and the highest she tested in any area was 20 months.
 
They're going to start working with her skills now- before they get a diagnosis.  We're being referred to someone whose job is to give diagnosis, but they're going to start physical, occupational, and speech therapy with her.  They're also thinking of seeing if we can get a sleep specialist to work with her.I'm tired just thinking about it.  They said that she isn't processing most of the verbal information she's getting; they're thinking an autism spectrum disorder.
 
I'm sitting here numb...the tears are in the back of my throat but I can't cry yet.  [Image: bawl.gif]  I just know this is my fault somehow; I shouldn't have got her vaccinated.  I should have gone into the hospital sooner during my homebirth...I should have.....
 
I went and saw a doctor for my pelvic pain.  They gave me two possible causes: endometrosis or that my big stomach is pressing on my uterus and I need to go on the South Beach diet (yep, that was the scientific medical diagnosis).  After the reading I've done, I'm about 100% sure it's endo; doctors have suspected it since my teen years.  I'm having some tough decisions to make re: hormonal treatments. 
 
 
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#2
Hi Sara, praying for you.  It is very hard to get a diagnosis of a long-term health malady in children.   Please don't blame yourself.  It will help a little I'm sure to have a more definitive diagnosis in order to know how to proceed in her best interests.  I am glad you are finding out how to help her.
 
When it comes to endometriosis, this can be helped by those good oils, according to Dr. Mercola.  http://www.mercola.com/2004/sep/29/endom...health.htm
 
http://www.google.com/custom?hl=en&lr=&ie=ISO-8859-1&cof=AWFID%3A5cdb2968a482194d%3BBGC%3A%23FFFFFF%3BT%3A%23000000%3BLC%3A%230000CC%3BVLC%3A%230000CC%3BALC%3A%230000CC%3BGALT%3A%23008000%3BGFNT%3A%23000000%3BGIMP%3A%23000000%3BDIV%3A%230000CC%3BLBGC%3A%23FFFFFF%3BAH%3Acenter%3B&domains=www.mercola.com&biw=740&q=endometriosis+treatment&sitesearch=www.mercola.com
 
My step-daughter-in-law has endo and went on Lupron, which she said did not help that much and it puts you in menopause temporarily.  She had horrible hot flashes!  She also had surgery for it.  She said it was SOOO painful.  Hugs to you.
 
 I was so glad she was able to get pregnant and have a healthy boy, as she loves kids.  What a hard time for you!  [Image: prayer3.gif]
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#3
Can I ask what exactly is wrong with your DD that these specialists are worried about?
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#4
I just feel for you so much, Sara.  You are going through such a rough time right now.  I don't have any advice, please don't blame yourself for your daughter and just remember that we will keep you and your family in our prayers.[Image: prayer3.gif]
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#5
She's behind in fine motor skills, gross motor skills, and language. There are also some behavioral concerns along the sensory integration/autism line.
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#6
Sara...I just want you to know that all of you will be in my prayers.  I knw that there is nothing on earth worse than having something..any-
thing wrong with your precious child.  I will pray that the doctors come up with a definite diagnosis, and that there will be something you can do.
 
Please...Don't blame yourself.  We are all the best parents we are capable of being....You have done your best, and I know you are a good mom to your daughter. 
 
As trite as it may sound, you have to turn this over to God....Let Him handle it for you....I know it is a hard thing to do....I fail at "giving it over" on a regular basis...But, it is the only way you will be able to cope.
 
God Bless you and your family.
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#7
tradcatholicmom Wrote:

They came and did a developmental evaluation w/ my DD today. She is 26 months and the highest she tested in any area was 20 months.

They're going to start working with her skills now- before they get a diagnosis. We're being referred to someone whose job is to give diagnosis, but they're going to start physical, occupational, and speech therapy with her. They're also thinking of seeing if we can get a sleep specialist to work with her.I'm tired just thinking about it. They said that she isn't processing most of the verbal information she's getting; they're thinking an autism spectrum disorder.

I'm sitting here numb...the tears are in the back of my throat but I can't cry yet. [Image: bawl.gif] I just know this is my fault somehow; I shouldn't have got her vaccinated. I should have gone into the hospital sooner during my homebirth...I should have.....

I went and saw a doctor for my pelvic pain. They gave me two possible causes: endometrosis or that my big stomach is pressing on my uterus and I need to go on the South Beach diet (yep, that was the scientific medical diagnosis). After the reading I've done, I'm about 100% sure it's endo; doctors have suspected it since my teen years. I'm having some tough decisions to make re: hormonal treatments.


I am so sorry to hear this about your DD, I'll keep all of you in my prayers.  I know you're going to worry, it's a mother's job don't ya know.  They could be just overly cautious.  My oldest son's pediatrician thought he had Down's Syndrome.  Did a bunch of tests and they came back normal.  He was a handful from 6 months old on, only slept about 4 hours a night and wouldn't take a nap to speak of.  I didn't get much sleep for the first two years.  He also had night terrors, and was hyperactive.  He's normal young man now, about to become a papa in September.  Whatever the outcome, do not blame yourself! 

I can sympathize with the endometriosis too, I was preliminarily diagnosed with that myself many years ago.  I didn't want to go through the endoscopy to find out for sure, so I just live with it.  The Paxil got rid of my pain, so the only inconvenience for me is that I have extremely heavy periods.  It's probably messed with my fertility too.

Praying that it all turns out to be good news.
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#8
Sara, I am just so sorry you're going through all this. It's been one thing after another after another for you, and this latest must feel HUGE. I pray everything works out perfectly with your girl and with your own health... I just really am sorry...
 
Now you KNOW that you would NEVER, EVER have done anything to intentionally harm your baby, so don't go knocking yourself over the "should haves" and "wish I hads." You know your heart, and God knows your heart, and chances are that anything that may be wrong is just "one of those things" and not anything you could have prevented. And maybe she's just being a little slow and is worrying you for nothing! Whatever the cause of what's going on now, that's water under the bridge; you just keep being the Mom you are and trust in Christ to take care of the rest. I have been praying for you and will keep doing it, my friend...
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#9
I'm certainly not a Mother, but I can imagine to a small degree what you must be going through! You have my prayers! [Image: prayer.gif]
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